“Did the Doctor ask you about a biopsy?”
The nurse queried while looking at a screen, viewing my results from an ultrasound I’d had an hour ago.
“Excuse me?”
She then back-tracked her question, stating that I was too young (35)… Que the Doctor, in his usual fashion, with a hug. He got right down to business and told that an ablation for my “issues” was no longer possible because I had “adenomyosis”. My blank stare tipped him off that I had no idea what he was talking about. Pulling up the pictures from my ultrasound, he told me that normal muscle would appear as a thick layer of gray. Looking at my pictures I viewed in shock that there were only a few splotches of grey among a sea of black holes and white spots. He began:
“The tech told me that the whole thing looked like that. It’s not just a couple of spots…”
Basically, the endometrium had invaded into the muscle lining and all those spots were invading lining, fibroids and cysts. Fast forward through the one million questions I ask him and we are now planning the date for a hysterectomy surgery, and a little reconstruction to the damage caused by childbearing (silver lining).
“I’m not telling anyone. I don’t want sympathy. I just want to sit quietly in the corner, heal and brush this under the rug and get on with my life.” I tell my husband.
I only know of a handful of women who have had this surgery. Two of them dear friends who, like me, were in their thirties. I am so grateful for these two vibrant friends and their candid, open conversations about struggles with feeling alone, in denial and even old. Often, the stigma that goes along with a hysterectomy is that it’s only for older women. And for good cause, all the women in brochures and websites appear to have been enjoying the retired life for a good number of years. But the reality is that, “66% of all hysterectomies in the US are performed on women in their thirties and forties” – Sex, Lies and the Truth about Uterine Fibroids. So why did my two friends feel completely alone? Why should any women feel alone? I’m not starting a feminist movement or even some cushy community. But I do want other women to know, you’re not alone! I choose to break the silence, shame and stigma that keep so many feeling alone. The truth is that: I am not alone, I am young, I will no longer be in constant pain nor have to plan my life around the”monsoon floods”. I will recover and get on with life better than my pre-surgery self. And that sounds pretty good.